Sometimes there can be something wrong with Maddie, but she’ll smile through the pain.

Sometimes medical appointments come at us hard and fast.

We could not face this diagnosis without the amazing Angelman Syndrome community.

An interaction at church, gave me a possible glimpse into Maddie’s adult life.

With a rare syndrome, insurance companies can be hard to deal with. This leads parents to seek a secondary diagnosis, to open up additional doors for their loved ones.

Seeing all of our friends, family, and coworkers wear blue meant the world to us.

International Angelman Syndrome Day is coming up this week.

When Maddie turns three, her daycare plan could change drastically thanks to a state law.

Maddie now knows what she wants. She just doesn’t always know how to express it.

The blog has turned a year old. I reflect on some of the wins we’ve already experienced this year.