Maddie Joy 9/6/24 Maddie Joy 9/6/24

A Year of Missing You - Part 2

In part 2 I discuss our grief journey in the first year of Maddie's passing.

Maddie Joy 8/30/24 Maddie Joy 8/30/24

A Year of Missing You - Part 1

In Part 1 I describe our final days with Maddie

Maddie Joy 7/29/24 Maddie Joy 7/29/24

Nicole and I attended our second ASF Family Conference.

Maddie Joy 5/20/24 Maddie Joy 5/20/24

Team Maddie’s Joy was at the 25th annual ASF Michigan Walk.

Maddie Joy 2/28/24 Maddie Joy 2/28/24

Nicole’s second blog post reflects on Maddie’s therapies.

Maddie Joy 2/19/24 Maddie Joy 2/19/24

This week has been a tidal wave of emotions

Maddie Joy 2/12/24 Maddie Joy 2/12/24

This week is a great week to honor Maddie.

Maddie Joy 2/5/24 Maddie Joy 2/5/24

An influential figure in Maddie’s life joined her in heaven recently.

Maddie Joy 12/18/23 Maddie Joy 12/18/23

Grieving the loss of Maddie has been difficult.

Maddie Joy 9/22/23 Maddie Joy 9/22/23

The Angelman Syndrome community showed us that we’re not just individual families but one great big family.